{"id":49567,"date":"2022-03-04T14:35:17","date_gmt":"2022-03-04T19:35:17","guid":{"rendered":"https:\/\/www.singlecare.com\/blog\/?p=49567"},"modified":"2022-03-04T17:19:52","modified_gmt":"2022-03-04T22:19:52","slug":"medication-management-for-people-with-down-syndrome","status":"publish","type":"post","link":"https:\/\/www.singlecare.com\/blog\/medication-management-for-people-with-down-syndrome\/","title":{"rendered":"Medication management for people with Down syndrome"},"content":{"rendered":"<h2><span style=\"font-weight: 400;\">Why is medication management especially important for patients with Down syndrome?<\/span><\/h2>\n<p><span style=\"font-weight: 400;\">According to <\/span><a href=\"https:\/\/jamanetwork.com\/journals\/jamainternalmedicine\/fullarticle\/215283\"><span style=\"font-weight: 400;\">the Journal of the American Medical Association<\/span><\/a><span style=\"font-weight: 400;\">, people with Down syndrome are about 12 times more likely to die from an infectious disease. Because people with Down syndrome are born with impaired immune function, their immune systems are weaker overall, which makes them more likely to get sick. They\u2019re also more prone to certain medical conditions, such as heart disease, respiratory infections, and Alzheimer\u2019s disease. In fact, an <\/span><a href=\"https:\/\/www.nia.nih.gov\/health\/alzheimers-disease-people-down-syndrome\"><span style=\"font-weight: 400;\">estimated 50% of people with Down syndrome<\/span><\/a><span style=\"font-weight: 400;\"> will develop Alzheimer\u2019s as they age. For these reasons, staying on top of medication management is especially important for people with Down syndrome and their caregivers.\u00a0<\/span><\/p>\n<p><span style=\"font-weight: 400;\">Because they may metabolize or process drugs differently, people with Down syndrome can be highly sensitive to medications. It\u2019s very important to monitor and watch for side effects when someone with Down syndrome starts a new medication.<\/span><\/p>\n<p><span style=\"font-weight: 400;\">In addition, those with Down syndrome are at increased risk for poor medication adherence because they may not understand or remember to take their medication. They could accidentally take too much or too little. So it\u2019s important to supervise them when they are taking their medication, or in the case of high-functioning individuals, to regularly check in to ensure they\u2019re taking the correct medications at the right times.<\/span><\/p>\n<h2><span style=\"font-weight: 400;\">What are the Five Rights of medication administration?<\/span><\/h2>\n<p><span style=\"font-weight: 400;\">The five rights of medication administration are a set of best practices for delivering medication to patients.\u00a0<\/span><\/p>\n<ul>\n<li style=\"font-weight: 400;\"><span style=\"font-weight: 400;\">Right patient<\/span><\/li>\n<li style=\"font-weight: 400;\"><span style=\"font-weight: 400;\">Right medication<\/span><\/li>\n<li style=\"font-weight: 400;\"><span style=\"font-weight: 400;\">Right dose<\/span><\/li>\n<li style=\"font-weight: 400;\"><span style=\"font-weight: 400;\">Right route<\/span><\/li>\n<li style=\"font-weight: 400;\"><span style=\"font-weight: 400;\">Right time<\/span><\/li>\n<\/ul>\n<p><span style=\"font-weight: 400;\">Here\u2019s how you know you\u2019re following the five rights correctly.\u00a0<\/span><\/p>\n<ul>\n<li style=\"font-weight: 400;\"><span style=\"font-weight: 400;\">Right patient: You have checked that you\u2019re not giving the wrong person medication meant for someone else.<\/span><\/li>\n<li style=\"font-weight: 400;\"><span style=\"font-weight: 400;\">Right medication: You have checked that you have the correct medication for them and are aware of any allergies they may have.<\/span><\/li>\n<li style=\"font-weight: 400;\"><span style=\"font-weight: 400;\">Right dose: You have checked that you\u2019re giving them the right amount of medication.<\/span><\/li>\n<li style=\"font-weight: 400;\"><span style=\"font-weight: 400;\">Right route: You are giving them their medication in the form they\u2019re supposed to receive it (e.g., as a pill, an injection, or a liquid medication).\u00a0<\/span><\/li>\n<li style=\"font-weight: 400;\"><span style=\"font-weight: 400;\">Right time: You are giving them their medication at the right time of day (morning, night, after eating, etc.) and at the right frequency (e.g., daily, once a week).<\/span><\/li>\n<\/ul>\n<h2><span style=\"font-weight: 400;\">General tips for effective Down syndrome medication management<\/span><\/h2>\n<p><span style=\"font-weight: 400;\">The key to good medication management for people with Down syndrome is to understand that these individuals have a medical condition that affects their ability to process medications.<\/span><\/p>\n<p><span style=\"font-weight: 400;\">This means they may need a different dosage, and the drug may need to be administered differently. For example, people with Down syndrome may need smaller doses more often rather than larger doses less often. Instead of a pill, they may need a liquid or chewable tablet.\u00a0<\/span><\/p>\n<p><span style=\"font-weight: 400;\">Remember to use positive reinforcement to motivate people with Down syndrome. Try to make taking their medication a fun time whenever possible.\u00a0<\/span><\/p>\n<p><span style=\"font-weight: 400;\">Safe storage is a key component of medication management for Down syndrome. Make sure the medication is stored in a place where it can only be accessed by you and any other caregivers.<\/span><\/p>\n<p><span style=\"font-weight: 400;\">Maintain an active relationship with their doctor and call them up whenever you spot signs of a potential allergic reaction or troubling side effect. Be proactive about seeking refills so that the person with Down syndrome doesn\u2019t miss a dose.\u00a0<\/span><\/p>\n<p><span style=\"font-weight: 400;\">One of the most challenging things about medication retention is remembering to give it at the correct time. Get a weekly pill dispenser, set alarms, and, if you have to, make sure to snooze your medication alarms&#8211;instead of turning them off&#8211;until they take it.\u00a0<\/span><\/p>\n<h3><span style=\"font-weight: 400;\">Medication list (prescription and over-the-counter)\u00a0<\/span><\/h3>\n<p><span style=\"font-weight: 400;\">Create a list of all the medications the person with Down syndrome is taking. You\u2019ll be able to keep track of everything and know if any pills are missing. This is critical because if you\u2019re a caregiver for someone with Down syndrome and they get into the medication stash, they could accidentally take a dangerous number of pills and potentially require hospitalization.<\/span><\/p>\n<p><span style=\"font-weight: 400;\">By keeping a medication list, you\u2019ll also be able to keep track of when they need a refill. You can write it down or use an app to track the list. Many of these apps (usually free) also allow you to record which medications you gave them, what time you gave the medication, and how much of the medication you gave.<\/span><\/p>\n<p><a href=\"https:\/\/www.singlecare.com\/blog\/wp-content\/uploads\/2021\/07\/Medication-Tracker.png\"><br \/>\n<img loading=\"lazy\" decoding=\"async\" class=\"aligncenter wp-image-37545 size-full\" src=\"https:\/\/www.singlecare.com\/blog\/wp-content\/uploads\/2021\/07\/Medication-Tracker.png\" alt=\"Printable medication tracker\" width=\"2400\" height=\"3000\" srcset=\"https:\/\/www.singlecare.com\/blog\/wp-content\/uploads\/2021\/07\/Medication-Tracker.png 2400w, https:\/\/www.singlecare.com\/blog\/wp-content\/uploads\/2021\/07\/Medication-Tracker-240x300.png 240w, https:\/\/www.singlecare.com\/blog\/wp-content\/uploads\/2021\/07\/Medication-Tracker-819x1024.png 819w, https:\/\/www.singlecare.com\/blog\/wp-content\/uploads\/2021\/07\/Medication-Tracker-768x960.png 768w, https:\/\/www.singlecare.com\/blog\/wp-content\/uploads\/2021\/07\/Medication-Tracker-1229x1536.png 1229w, https:\/\/www.singlecare.com\/blog\/wp-content\/uploads\/2021\/07\/Medication-Tracker-1638x2048.png 1638w\" sizes=\"auto, (max-width: 2400px) 100vw, 2400px\" \/><\/a><\/p>\n<p><a href=\"https:\/\/www.singlecare.com\/blog\/wp-content\/uploads\/2021\/07\/Medication-Tracker.pdf\" target=\"_blank\" rel=\"noopener\">Download this free medication tracker<\/a><\/p>\n<h3><span style=\"font-weight: 400;\">Store and organize the pills in a safe place\u00a0<\/span><\/h3>\n<p><span style=\"font-weight: 400;\">It can be difficult to keep track of medications. Make your life easier by storing and organizing them in a safe place. For safety purposes, keep medications out of reach of the person you\u2019re caring for, unless they\u2019re high-functioning enough to understand the dangers of taking too many pills or giving the pills to anyone who wasn\u2019t prescribed them.\u00a0<\/span><\/p>\n<h3><span style=\"font-weight: 400;\">Use a timed or automatic pill dispenser<\/span><\/h3>\n<p><span style=\"font-weight: 400;\">Many people have trouble remembering to take their pills every day. If part of your job is to give pills to a person with Down syndrome, it can be difficult for you to remember, too. This challenge is where timed or automatic pill dispensers can help. A well-designed pill dispenser will remind you which day to administer the pills and what type of pill to give. It will also help you remember if you already gave them their medication that day, so you don\u2019t forget and accidentally give them a pill more than once.<\/span><\/p>\n<h2><span style=\"font-weight: 400;\">Daily usage reminders<\/span><\/h2>\n<h3><span style=\"font-weight: 400;\">Set daily alarms<\/span><\/h3>\n<p><span style=\"font-weight: 400;\">As a caregiver for someone with Down syndrome, it\u2019s a good idea to set alarms on your phone or alarm clock for the times you\u2019re supposed to give medication. If you can\u2019t give their medication right away (something spilled, there\u2019s an emergency, etc.), resist the urge to turn off the alarm. Instead, get in the habit of hitting snooze. That way, the alarm will come back on before you get too distracted and forget it\u2019s medication time.\u00a0<\/span><\/p>\n<h3><span style=\"font-weight: 400;\">Give medications at different times to reduce side effects<\/span><\/h3>\n<p><span style=\"font-weight: 400;\">With their doctor\u2019s permission, you can experiment with giving your child or adult with Down syndrome their medication before or after breakfast to see if it reduces side effects. If their medication is keeping them awake or making them sleepy, you can try giving them their medication first thing in the morning or before bed.<\/span><\/p>\n<h2><span style=\"font-weight: 400;\">Understanding the Drug Facts label\u00a0<\/span><\/h2>\n<h3><span style=\"font-weight: 400;\">Interactions<\/span><\/h3>\n<p><span style=\"font-weight: 400;\">Medications are designed to treat different medical conditions. However, some medications don\u2019t combine well. Medications can cause dangerous side effects and even death when taken together. Many of the medications that you take may interfere with the way other medications are processed by your body. Make sure the healthcare provider has a full list of medications the person with Down syndrome is taking; it\u2019s also important to note if the person has had allergic reactions to medications in the past.<\/span><\/p>\n<h2><span style=\"font-weight: 400;\">Understanding common medication issues specific to Down syndrome<\/span><\/h2>\n<h3><span style=\"font-weight: 400;\">Common medications<\/span><\/h3>\n<p><span style=\"font-weight: 400;\">There are no standard medications currently available to directly treat Down syndrome. However, most people with Down syndrome take medications to alleviate other medical conditions they have or to treat pain and discomfort. Certain medications like diuretics and digoxin are <\/span><a href=\"https:\/\/emedicine.medscape.com\/article\/943216-medication\"><span style=\"font-weight: 400;\">commonly used to treat heart failure<\/span><\/a><span style=\"font-weight: 400;\"> in people with Down syndrome since they may be born with a congenital heart defect. <\/span><a href=\"https:\/\/www.singlecare.com\/drug-classes\/diuretics\"><span style=\"font-weight: 400;\">Diuretics<\/span><\/a><span style=\"font-weight: 400;\">, which help flush the body of salt and water, are used to manage congestive heart failure. <\/span><a href=\"https:\/\/medlineplus.gov\/druginfo\/meds\/a682301.html\"><span style=\"font-weight: 400;\">Digoxin<\/span><\/a><span style=\"font-weight: 400;\"> is used to treat heart failure and irregular heartbeats by improving the function of the heart and regulating the heartbeat.<\/span><\/p>\n<h3><span style=\"font-weight: 400;\">Side effects and how they can impact ability to take medication<\/span><\/h3>\n<p><span style=\"font-weight: 400;\">Common side effects to medications like diuretics and digoxin can include dizziness, lightheadedness, drowsiness, and diarrhea. Side effects can make people with Down syndrome reluctant to take their medication or refuse to take it at all. Consult their doctor to find out if they can tweak the medication to minimize side effects or if there are other medication options that may be better for them.<\/span><\/p>\n<h2><span style=\"font-weight: 400;\">How to encourage Down syndrome patients to take medication<\/span><\/h2>\n<h3><span style=\"font-weight: 400;\">Use positive reinforcement<\/span><\/h3>\n<p><span style=\"font-weight: 400;\">When someone with Down syndrome takes their medication on time, praise them. Don\u2019t criticize them when they miss a dose. Something like a star chart could be a helpful visual aid. They\u2019ll be able to see how many days they were able to accomplish taking their medication in a row and (if appropriate) work their way toward winning a small prize.\u00a0<\/span><\/p>\n<h3><span style=\"font-weight: 400;\">Figure out what the obstacles are<\/span><\/h3>\n<p><span style=\"font-weight: 400;\">What\u2019s really stopping the person with Down syndrome from taking their medication? Do they dislike the taste of the pill? Do they have a medical condition that causes trouble swallowing and need a liquid or chewable solution? Are they part of a care program in which someone else is responsible for giving medication to them but is inconsistent with giving medications on time? Find out what the obstacle is so you can work on the issue directly.<\/span><\/p>\n<h3><span style=\"font-weight: 400;\">Make it fun<\/span><\/h3>\n<p><span style=\"font-weight: 400;\">If you\u2019re responsible for giving medication to someone with Down syndrome, find ways to make the process fun for them. How about a pill dispenser in their favorite color? Or a Star Wars-themed pill case?<\/span><\/p>\n<h2><span style=\"font-weight: 400;\">Minimizing pharmacies and doctors<\/span><\/h2>\n<h3><span style=\"font-weight: 400;\">The fewer, the better<\/span><\/h3>\n<p><span style=\"font-weight: 400;\">Keeping the team of healthcare providers small makes it less likely that a bad drug interaction will occur. The risk of a drug interaction slipping through the cracks goes up when you have more doctors and healthcare providers taking care of a patient. For example, doctors may prescribe new drugs that the other healthcare providers are unaware of, or pharmacies may continue prescribing drugs that may have been discontinued by a specific doctor. When possible, try to minimize the number of doctors and pharmacies you use.<\/span><\/p>\n<h2><span style=\"font-weight: 400;\">When to reach out to a medical professional<\/span><\/h2>\n<h3><span style=\"font-weight: 400;\">They need a refill<\/span><\/h3>\n<p><span style=\"font-weight: 400;\">Be proactive about refills. Try to schedule your appointments for when the person with Down syndrome\u2019s medication is about to run out. If it\u2019s not possible to set up a recurring appointment, keep a reminder in your medication list of dates to start asking for a refill.<\/span><\/p>\n<h3><span style=\"font-weight: 400;\">They lost or spilled a dose<\/span><\/h3>\n<p><span style=\"font-weight: 400;\">If a dose gets lost or spilled, contact the healthcare provider to let them know what happened and notify them you may be needing a refill early.<\/span><\/p>\n<h3><span style=\"font-weight: 400;\">Someone else accidentally took their medication<\/span><\/h3>\n<p><span style=\"font-weight: 400;\">A person with Down syndrome may be missing one or more doses because someone else accidentally took their pills. Contact the doctor to schedule an urgent refill and review the Five Rights with other caregivers. Accidents happen, but reviewing what happened is always a good idea.<\/span><\/p>\n<h3><span style=\"font-weight: 400;\">Their pills aren\u2019t working anymore or they won\u2019t take them<\/span><\/h3>\n<p><span style=\"font-weight: 400;\">If something isn\u2019t right with a medication or the person with Down syndrome is refusing to take it, contact their doctor immediately to set up an appointment. They may be able to help you with tips for medication adherence. If the medication is no longer working, the doctor can try to adjust the dose or medication for a better outcome.<\/span><\/p>\n<h3><span style=\"font-weight: 400;\">They\u2019re showing signs of an allergic reaction to medication<\/span><\/h3>\n<p><span style=\"font-weight: 400;\">When caring for someone with Down syndrome, watch for signs of an allergic reaction to a medication like skin rash, itching, swelling of the face or throat, and trouble breathing. Consult the information packet that came with the medication for a list of the most common side effects and potential signs of an allergic reaction. If you see signs of an allergic reaction, seek medical attention immediately.<\/span><\/p>\n<h2><span style=\"font-weight: 400;\">How to ensure that medication management for people with Down syndrome is effective<\/span><\/h2>\n<p><span style=\"font-weight: 400;\">Medications for Down syndrome can be different from those for other people. People with Down syndrome have a medical condition that can affect the way their body processes medications. People with Down syndrome may also have other health conditions that require the use of different medications. To make sure you\u2019re effectively managing a medication plan for someone with Down syndrome, create a medication list, make sure their medication is stored correctly, regularly schedule refills, and report side effects and allergic reactions to their doctor immediately.\u00a0<\/span><\/p>\n","protected":false},"excerpt":{"rendered":"<p>Why is medication management especially important for patients with Down syndrome? According to the Journal of the American Medical Association, people with Down syndrome are about 12 times more likely to die from an infectious disease. Because people with Down syndrome are born with impaired immune function, their immune systems are weaker overall, which makes [&hellip;]<\/p>\n","protected":false},"author":15,"featured_media":49633,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[8029],"tags":[],"coauthors":[8861],"class_list":["post-49567","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-health-education","wpautop"],"acf":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO Premium plugin v27.4 (Yoast SEO v27.4) - https:\/\/yoast.com\/product\/yoast-seo-premium-wordpress\/ -->\n<title>Medication management for people with Down syndrome<\/title>\n<meta name=\"description\" content=\"Staying on top of medication management is especially important for people with Down syndrome and their caregivers.\" \/>\n<meta name=\"robots\" content=\"index, follow, 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