{"id":6259,"date":"2019-10-28T10:00:19","date_gmt":"2019-10-28T14:00:19","guid":{"rendered":"https:\/\/www.singlecare.com\/blog\/?p=6259"},"modified":"2020-10-08T17:57:55","modified_gmt":"2020-10-08T21:57:55","slug":"living-with-psoriasis","status":"publish","type":"post","link":"https:\/\/www.singlecare.com\/blog\/living-with-psoriasis\/","title":{"rendered":"What it\u2019s really like living with psoriasis"},"content":{"rendered":"

Psoriasis is an autoimmune condition that causes a build-up of skin cells that can look whitish and flaky or red and inflamed. When you think of psoriasis, you probably think of irritated, patchy skin. When I think of psoriasis? It\u2019s the emotional side that comes to mind.\u00a0<\/span><\/p>\n

I remember the first time I was shamed for a flare-up like it was yesterday. I was at the grocery store picking up a few odds and ends. While checking out, I had a pleasant conversation with the cashier and was waiting for him to hand me my change. He was holding it just over the palm of my hand when I saw his eyes fall on the red scaly patch on my wrist. The smile fell from his face, and he pulled his hand half-a-foot away to drop the change into mine. It wouldn\u2019t be the last time something like this happened. The sudden, exaggerated shift in his demeanor, and the way he recoiled in disgust and fear stays with me.<\/span><\/p>\n

I know it might not sound like a big deal. I know I\u2019m not supposed to care what others think, that I\u2019m supposed to be comfortable in my own skin. But that can be so difficult when it\u2019s my own skin that\u2019s betraying me. How could I feel good about myself now that I knew the itchy little area on my forearm has become a physical repellant to those around me?<\/span><\/p>\n

The emotional toll of living with psoriasis<\/span><\/h2>\n

I spent many years trying to come to terms with the flaming patches popping up all over my skin. When the flaky, sometimes bloody little spots spread from my scalp to my elbows and knees, I started wearing longer shorts. I switched from wearing T-shirts to button-downs, strategically rolled to just below the elbow. \u201cThis is fine,\u201d I told myself. \u201cI can deal with this.\u201d As the plaques began to show up on forearms, hands, and calves, I stopped rolling my sleeves, and I wore full-length pants\u2014no matter the season or location. \u201cLaying on the beach in jeans and a full-length button-down is normal,\u201d I thought. It didn\u2019t matter if people thought it looked odd, at least they weren\u2019t afraid of me.<\/span><\/p>\n

It turns out, I\u2019m not alone. \u201cIt can be psychologically devastating for patients who have visible red patches on their body,\u201d says <\/span>Doris Day, MD<\/span><\/a>, a board-certified dermatologist. \u201cI have patients who are young women who won’t wear skirts or shorts if they have any patches on their legs and other patients who won’t go on dates or job interviews if they have hand involvement.\u201d<\/span><\/p>\n

I lied to myself for almost two years. I hid my skin away and told myself I was okay. All the while I was feeling increasingly disconnected from the people around me, who I wouldn\u2019t allow to see my skin anymore. It wasn\u2019t that they would be cruel. No one ever was, at least not intentionally. It was because I didn\u2019t want to see the look in their eyes when they came to rest on my skin. I didn\u2019t want to explain what the redness was. Or more honestly, I didn\u2019t want to lie out of shame, again. The condition that started with a little irritation behind my right ear was consuming me, and was threatening to ruin my life.<\/span><\/p>\n

A growing list of treatment options<\/span><\/h2>\n

Biologics were becoming more common at the time, but despite research showing they were relatively safe, I was still uncertain. As I read about these seemingly miracle injections that could rid me of my constant physical and mental discomfort, I didn\u2019t care if it was safe. My thinking was if I could take a pill that would cure my psoriasis, but shave 10 years off the end of my life, I would take it. I realized then the toll this disease was taking on my life. I needed to do something to save myself from the downward spiral.\u00a0<\/span><\/p>\n

So I took the plunge, and I couldn\u2019t be happier that I did. There were a few treatment options, but I went with <\/span>Stelara<\/span><\/a>. And it has changed my life. Am I 100% clear? No. I still apply steroid solutions behind my ears. I still need to treat the crevices from time to time. And there\u2019s a decent size, persistent spot on my left calf I get treated with cortisone injections.\u00a0<\/span><\/p>\n

\u201cTopical steroids can be very helpful for psoriasis,\u201d Dr. Day says. \u201cSteroid injections can also be helpful but not an ideal long-term solution. I believe that psoriasis is best treated by managing a number of factors, from diet to stress to skin care. It often requires a healthcare team that could include your dermatologist, rheumatologist, cardiologist, and primary care physician.\u201d<\/span><\/p>\n

RELATED<\/strong>: Psoriasis treatment and medications<\/a><\/p>\n

Learning to accept psoriasis (and find support)<\/span><\/h2>\n

It doesn\u2019t matter that every single plaque isn\u2019t gone. I walk around in shorts and T-shirts without trepidation. I don\u2019t fear the eyes of friends and strangers. I\u2019m finally comfortable, if not a little itchy, in my own skin.\u00a0<\/span><\/p>\n

If you\u2019re out there living with this condition, if you\u2019re wearing long sleeves in the sweltering heat, if you avert your eyes from the gaze of others for fear of what you may see\u2014know that you\u2019re not alone. Know that there is hope. If you\u2019re considering giving up, don\u2019t. There are others out there who have felt the same despair. There are others out there who thought it would never get better. There are others out there who have lost hope.\u00a0<\/span><\/p>\n

Most importantly there are others out there who have overcome these issues. There is hope, even if it doesn\u2019t feel like it. Keep trying! Talk to your dermatologist. Your salvation could be one treatment away. If it\u2019s not available now, it may be soon. New treatments are on the way. And even if there isn\u2019t a treatment that works for you, you can learn to accept your skin and feel good about yourself. Don\u2019t give up!<\/span><\/p>\n","protected":false},"excerpt":{"rendered":"

Psoriasis is an autoimmune condition that causes a build-up of skin cells that can look whitish and flaky or red and inflamed. When you think of psoriasis, you probably think of irritated, patchy skin. When I think of psoriasis? It\u2019s the emotional side that comes to mind.\u00a0 I remember the first time I was shamed […]<\/p>\n","protected":false},"author":85,"featured_media":6580,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[8318],"tags":[],"coauthors":[10343],"class_list":["post-6259","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-community","wpautop"],"acf":[],"yoast_head":"\nLiving with psoriasis: What the emotional side is really like<\/title>\n<meta name=\"description\" content=\"Psoriasis is a skin condition. But living with psoriasis, has a real psychological and emotional impact. 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