{"id":8823,"date":"2020-03-02T09:00:19","date_gmt":"2020-03-02T14:00:19","guid":{"rendered":"https:\/\/www.singlecare.com\/blog\/?p=8823"},"modified":"2020-02-21T10:24:43","modified_gmt":"2020-02-21T15:24:43","slug":"living-with-endometriosis","status":"publish","type":"post","link":"https:\/\/www.singlecare.com\/blog\/living-with-endometriosis\/","title":{"rendered":"What it\u2019s like living with endometriosis"},"content":{"rendered":"<p><span style=\"font-weight: 400;\">At two in the afternoon, I\u2019m home in bed. I have three heating pads plugged in; one for my stomach, one for my lower back and hips, and one for my mid back, where the pain often just sits. My body is literally wrapped in heat, and still\u2026 the pain makes it difficult to focus.<\/span><\/p>\n<p><span style=\"font-weight: 400;\">It\u2019s not always like this, though. These days, the pain is typically concentrated around my periods, with the second day usually presenting as the worst. When I take care of myself\u2014when I get enough sleep, avoid caffeine, and stick to an anti-inflammatory diet\u2014it\u2019s more manageable. After having five major abdominal surgeries, my pain is much less than it was before.<\/span><\/p>\n<p><span style=\"font-weight: 400;\">I have Stage IV endometriosis. In a lot of ways, pain is just my normal.<\/span><\/p>\n<h2><span style=\"font-weight: 400;\">What is endometriosis?<\/span><\/h2>\n<p><span style=\"font-weight: 400;\">The<\/span> <a href=\"https:\/\/www.acog.org\/Patients\/FAQs\/Endometriosis?IsMobileSet=false\" target=\"_blank\" rel=\"noopener noreferrer\"><span style=\"font-weight: 400;\">American College of Obstetricians and Gynecologists<\/span><\/a><span style=\"font-weight: 400;\"> (ACOG) describes endometriosis as a condition where tissue from the uterus is found outside the uterus. These implants of endometrial tissue grow and bleed just as the uterine lining does each month. Only the tissue outside the uterus has nowhere to go\u2014it can\u2019t just shed out of your body like your uterine lining does. This causes scar tissue, inflammation, irritation and pain. In my case, it has more than once caused my uterus to become fused to my bowels.<\/span><\/p>\n<p><span style=\"font-weight: 400;\">And this is not at all uncommon.\u00a0\u00a0<\/span><\/p>\n<h2><span style=\"font-weight: 400;\">Who gets endometriosis?<\/span><\/h2>\n<p><span style=\"font-weight: 400;\">\u201cIt is estimated that 5.5 million women in North America and 176 million women worldwide have endometriosis,\u201d says<\/span> <a href=\"https:\/\/www.vitalhealth.com\/author\/aprilvhicoo\/\" target=\"_blank\" rel=\"noopener noreferrer\"><span style=\"font-weight: 400;\">April Summerford<\/span><\/a><span style=\"font-weight: 400;\">, who has endometriosis herself and is a women\u2019s health advocate at Vital Health Endometriosis Center. \u201cIt affects 1 in 10 women in their reproductive years.\u201d<\/span><\/p>\n<p><a href=\"https:\/\/www.drlamcoaching.com\/\" target=\"_blank\" rel=\"noopener noreferrer\"><span style=\"font-weight: 400;\">Carrie Lam<\/span><\/a><span style=\"font-weight: 400;\">, MD, a board-certified family medicine practitioner, says \u201cendometriosis is one of the prevalent reproductive health issues and a leading cause of infertility.\u201d<\/span><\/p>\n<h2><span style=\"font-weight: 400;\">What are the symptoms of endometriosis?<\/span><\/h2>\n<p><span style=\"font-weight: 400;\">Dr. Lam says symptoms of endometriosis can include:<\/span><\/p>\n<ul>\n<li style=\"font-weight: 400;\"><span style=\"font-weight: 400;\">Painful periods accompanied by excessive bleeding<\/span><\/li>\n<li style=\"font-weight: 400;\"><span style=\"font-weight: 400;\">Painful digestion<\/span><\/li>\n<li style=\"font-weight: 400;\"><span style=\"font-weight: 400;\">Painful intercourse<\/span><\/li>\n<li style=\"font-weight: 400;\"><span style=\"font-weight: 400;\">Infertility<\/span><\/li>\n<li style=\"font-weight: 400;\"><span style=\"font-weight: 400;\">Chronic abdominal and lower back pain<\/span><\/li>\n<li style=\"font-weight: 400;\"><span style=\"font-weight: 400;\">Chronic fatigue<\/span><\/li>\n<li style=\"font-weight: 400;\"><span style=\"font-weight: 400;\">Bleeding and spotting between cycles<\/span><\/li>\n<li style=\"font-weight: 400;\"><span style=\"font-weight: 400;\">Constipation<\/span><\/li>\n<li style=\"font-weight: 400;\"><span style=\"font-weight: 400;\">Increased pain during urination and bowel movements<\/span><\/li>\n<li style=\"font-weight: 400;\"><span style=\"font-weight: 400;\">Pelvic pain<\/span><\/li>\n<li style=\"font-weight: 400;\"><span style=\"font-weight: 400;\">Nausea<\/span><\/li>\n<li style=\"font-weight: 400;\"><span style=\"font-weight: 400;\">Bloating<\/span><\/li>\n<li style=\"font-weight: 400;\"><span style=\"font-weight: 400;\">Nerve pain and joint pain<\/span><\/li>\n<\/ul>\n<p><span style=\"font-weight: 400;\">Because surgery is required for an official diagnosis,<\/span> <a href=\"https:\/\/academic.oup.com\/humrep\/article\/18\/4\/756\/596537\" target=\"_blank\" rel=\"noopener noreferrer\"><span style=\"font-weight: 400;\">research<\/span><\/a><span style=\"font-weight: 400;\"> shows that women live with endometriosis for an average of seven years from first symptoms until diagnosis.<\/span><\/p>\n<p><span style=\"font-weight: 400;\">Summerford says that sadly, one of the biggest reasons for this delay is that, \u201cDoctors still dismiss period pain as \u2018normal woman problems\u2019 and fail to investigate the root causes behind the pain.\u201d<\/span><\/p>\n<h2><span style=\"font-weight: 400;\">Endometriosis treatment that worked for me<\/span><\/h2>\n<p><span style=\"font-weight: 400;\">Dr. Andrew Cook at <\/span><a href=\"https:\/\/www.vitalhealth.com\/meet-dr-cook\/\" target=\"_blank\" rel=\"noopener noreferrer\"><span style=\"font-weight: 400;\">Vital Health Institute<\/span><\/a><span style=\"font-weight: 400;\"> is the doctor who gave me my life back. After three surgeries, I still deal with pain\u2014but it\u2019s less frequent. Before I found him, pain was something I had to survive every day.<\/span><\/p>\n<p><span style=\"font-weight: 400;\">My scar tissue had gotten too extensive, and the extra tissue had spread throughout my abdominal cavity. I was suffering all the time. I nearly had to take a disability leave because getting out of bed and to work every day was so challenging.<\/span><\/p>\n<p><span style=\"font-weight: 400;\">I tried every single Western and Eastern treatment available. My OBGYN put me on birth control, then a drug called <\/span><a href=\"https:\/\/www.singlecare.com\/prescription\/lupron-depot-1-month\"><span style=\"font-weight: 400;\">Lupron<\/span><\/a><span style=\"font-weight: 400;\">. She recommended I pursue fertility treatments before it was too late, and in the year that followed, I had two in vitro fertilization (IVF) cycles fail.<\/span><\/p>\n<p><span style=\"font-weight: 400;\">My acupuncturist performed cupping and placed needles in my eyelids. She recommended me to a \u201chealer\u201d whose magic hands did manage to rid my body of pain, at least in short intervals. I also saw a naturopath who recommended supplements and dietary changes. And at one point, I was drinking a tea concoction mixed with squirrel poop ordered from overseas. Because if my acupuncturist gave it to me, I was trying it.<\/span><\/p>\n<p><span style=\"font-weight: 400;\">That was when I found Dr. Cook, one of the few doctors in the country performing excision surgery at the time. The surgery he described was far more extensive than anything else I\u2019d experienced so far, with the goal being to excise every endometrial implant from outside my uterus.<\/span><\/p>\n<p><span style=\"font-weight: 400;\">My first surgery lasted more than five hours. My second one, a year later, was about the same. It was followed almost immediately by a third, a few days later, with the intention of removing the last of my scar tissue.<\/span><\/p>\n<p><span style=\"font-weight: 400;\">It\u2019s been more than eight years since those surgeries now. And only in the past two has the pain started to come back. Slowly, at least. Nowhere near as incapacitating as it once was.<\/span><\/p>\n<h2><span style=\"font-weight: 400;\">Living with endometriosis: There\u2019s no cure, but there is relief<\/span><\/h2>\n<p><span style=\"font-weight: 400;\">Even with a diagnosis, there is no true cure for endometriosis. Though excision surgery certainly gave me the most long-term relief.<\/span><\/p>\n<p><span style=\"font-weight: 400;\">It\u2019s probably time for me to have another surgery. But as I near my 40s, I know that my next surgery should most likely be a hysterectomy. And I just haven\u2019t been ready for that yet. So, I manage my pain with a variety of tools these days: heating pads, hot baths, and <\/span><a href=\"https:\/\/www.singlecare.com\/prescription\/celebrex\"><span style=\"font-weight: 400;\">Celebrex<\/span><\/a><span style=\"font-weight: 400;\"> help. I also take a natural supplement called pycnogenol every day, as it is the one supplement that has actually<\/span> <a href=\"https:\/\/www.ncbi.nlm.nih.gov\/pubmed\/17879831\" target=\"_blank\" rel=\"noopener noreferrer\"><span style=\"font-weight: 400;\">been studied<\/span><\/a><span style=\"font-weight: 400;\"> (with positive results) for endometriosis. The <\/span><a href=\"https:\/\/www.singlecare.com\/blog\/does-keto-diet-work\/\"><span style=\"font-weight: 400;\">keto diet<\/span><\/a><span style=\"font-weight: 400;\"> has proven to be most effective at reducing inflammation for me. And when the pain still breaks through all of that? I microdose marijuana during my worst days.<\/span><\/p>\n<p><span style=\"font-weight: 400;\">And it works. It all works together to keep me functional and strong, so that I can continue working and being a mother to my child while living with endometriosis.<\/span><\/p>\n<p><span style=\"font-weight: 400;\">It\u2019s been more than a decade since my original diagnosis, and I\u2019d like to think I\u2019ve gotten a handle on what my body needs these days. It\u2019s not a perfect science, but I\u2019m no longer in pain every day. It wasn\u2019t any one thing that helped get me there, though surgery with a true endometriosis specialist certainly pushed me furthest along. But it\u2019s been a combination of medical care and natural remedies that has really gotten me to the functional place I am today.<\/span><\/p>\n<p><span style=\"font-weight: 400;\">And for all of it, I am thankful.<\/span><\/p>\n","protected":false},"excerpt":{"rendered":"<p>At two in the afternoon, I\u2019m home in bed. I have three heating pads plugged in; one for my stomach, one for my lower back and hips, and one for my mid back, where the pain often just sits. My body is literally wrapped in heat, and still\u2026 the pain makes it difficult to focus. [&hellip;]<\/p>\n","protected":false},"author":93,"featured_media":9068,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[8318],"tags":[8670],"coauthors":[9053],"class_list":["post-8823","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-community","tag-womens-health","wpautop"],"acf":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO Premium plugin v27.4 (Yoast SEO v27.4) - https:\/\/yoast.com\/product\/yoast-seo-premium-wordpress\/ -->\n<title>What it\u2019s like living with endometriosis: A personal essay<\/title>\n<meta name=\"description\" content=\"175 million women worldwide are living with endometriosis. I know I\u2019m not alone, but that doesn\u2019t help the pain. 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